EEG

Well, the dreaded EEG is done. I am not sure if I posted the date change, but it was yesterday. We were supposed to meet wtih the neurologist immediately after to go over the results, but he cancelled our appointment. That was disappointing, but in reality, it probably made the day more manageable. We got to get home by 4.

So, the EEG process is brutal. We had to sleep deprive Sam, only allowing her to sleep from midnight until 5 a.m. They said 4 a.m. but absolutely no later than 5 a.m. so we went with 5 a.m. That meant we had to be up too. I went to sleep around 10 so that I cuold be up at 4 and be ready to get her up at 5. Fraser had her 10-12 and then got to sleep a little longer in the a.m. since he was driver. We had to leave at 7 so he didn't get to sleep too much longer. We actually had a pretty fun night with her. We went to dinner, and then for a little walk and to a coffee shop for dessert for her, and a place to hang out. She got to have ice cream at 9 at night! So we hung out and had a good time together. Then we went home and she watched some videos and mom went to bed.

The next day, she woke up ok at 5, although was not happy about it, as you might imagine. She watched a video, to wake up and then had some breakfast. We packed up and left. The drive was uneventful. We gave her a DVD to watch and that kept her awake. Not much traffic to speak of. They took us almost on time and we went into the room, for the worst torture of life...to watch them measure her head and glue 30 electrodes onto her head. She has to be held still for this, and restraining her is bad, and holding her head is awful. For some reason she really hates that...gee could it be from 12 brain surgeries? So she cried and cried and cried. Books helped, but she still cried a lot. Then finally she got to go to sleep. For 20 minutes. Then we had to wake her up, and hold her head while they flashed a strobe light in her face for 10 minutes. That was a treat. And then finally they were done. Taking the electrodes off was a disaster, with lots more crying. It just broke my heart to watch her cry so much and to go through all of this, with all she has already been through. It is a really hard procedure for all of us.

So after it was over, we got her calmed down and gave her some lunch. We got the car, and headed home. She did sleep in the car, which was good. She ended up taking a 3.5 hour nap between the car ride and then being home. We even got a little nap in. Then, she didn't want to go to bed. She had a really hard time being alone in her room. That is not typical for her, but after her day, we certainly understood. So she stayed up and watched some TV with us, and went to bed. She was so sweet. She is so sweet.

And she slept nice and long, until 8:30 this morning. YAY! So we all feel a lot better today. Now we just wait for results.