Sam is really trying to talk. She is repeating lots of words every day. Not clear as a bell all the time, but she is getting them out. It is really great to hear her talk. She says "Good girl" a lot. Last night we get her saying "Auntie" to her auntie Lisa. She copied us saying "Ah-choo!" which was really cute. She is just working so hard on the speeking. I am excited. Her therapist was saying that she expected lots of changes once school starts...we shall see. I hope she can talk to us sooner than later--so curious what she is thinking.
PT wise, she is still working hard to regain her strength, but she has the will to work on things. Walking is coming slowest, but she will get there I am sure. She wants it badly. You can see it.
She had her vision evaluation last week and her central vision is pretty good. there is some question about her peripheral vision--there has always been a question of that, so we will have to wait and see. It is hard to know waht is motor and what is vision sometimes with her.
A part of her optic nerve appears to have some damage, as well. So there is likely some limited vision due to that. But all in all she is doing pretty good from a functional standpoint. We don't see much for limitations in her sight, so it isn't too bad. And even the dr. said that while her vision isn't perfect, it is pretty good and she is on the high end of the scale...so it isn't anything people are worried about--just wanting to monitor her and do all that we can to maximize her vision.
We are trying hard to hang in there, with the stressors of life. It has been a challenge, even with Sam doing well. now there is room to have the other parts of life come back into focus, and causing some stress. But in the scheme of things, having Sam do well is what is most important. The rest is extras
So we continue the transition process for school to start in Feb. It is so close, I can't even believe it. I still am feeling the loss of 4 months, and my whole life is thrown off from it. I need those 4 months back. I am all out of synch. I wonder if life will ever feel normal again? I wonder if life will ever seem to be more than getting by. I really hope so. We really need.
So that is that. Not much else to say.
Love,
Lisa
